Bristol, 5 - 8 March 2014
Solihull, 11 - 14 June 2014 *Pending Confirmation!
Frome, Somerset 3 - 7 February 2014
My Introduction to Angelman Syndrome
Angelman Syndrome is a rare condition characterized by severe learning difficulties and unsteady, jerky or trembling movements. It is caused by a variety of disorders related to chromosome 15.
It was a British pediatrician who first described the syndrome in 1965. People with AS are sometimes known as ‘Angels’ because of the syndrome’s name and because of their innocent, smiling and happy appearance.
Epilepsy occurs in about 90% but may improve with age. There are severe development delays and the children are usually slow to walk, often not until 3-4 years of age.
I have had the privilege of working with Miklos, his courageous mother and his patient, gentle and mature brother Marton for the past six months. His mother has worked tirelessly to improve his condition, finding every possible therapeutic experience for him and alarmingly having to have him hospitalized with epileptic fits until the medication could be appropriately adjusted.
Working cranio-sacrally with Miklos has been an experience I will never forget. He first came when he was just three and was placid and compliant. He would immediately go into still point and as we played on the floor with the toy box he would lean onto me and sometimes just relax or go to sleep while I held him. Immense heat manifested as I worked with a pronounced frontal override but generally he would use the time with me to work at his own pace in his own way. He had no strength in his legs and could not stand. His mother was very realistic and said without any self pity ‘he will always be a baby’.
His CranioSacral Rhythm was originally quite weak particularly in the legs and feet and as that improved the correlation with his ability to stand, pull himself up, and begin to walk supported with his mothers hands was very moving to watch. The literature does state that walking generally improves between 3-4 years and here we are now at three and a half - and it certainly has.
What I have observed, however, is the pronounced correlation with that ability to manifest physical strength and the robustness of the CSR, especially as it has gradually strengthened in the legs and feet.
Please note that I am making no claims here. I have merely observed and am stating the fact. I wish that beautiful and gentle family all good things as they return home in July.
Ann Margaret Whittle